COLLECTION METHODS

Definition

The variables in which interview/questionnaire data were collected from the person with brain injury and/or proxy as well as salient metrics such as completion status and length of the interview.

Form

[X] Form 1
[X] Form 2

Source

Data collector determines the methods used to collect the Pre-Injury History and Follow-Up data.

Details

Form 1 - Pre-Injury History
  • If more than one method was used to collect data, code the method that the most information was collected from.
  • If data was collected from more than one person, code the person that the most information was collected from
Form 2 - Follow-up Interview
  • Code the Primary method and Source as the method/source that the most information was collected from.

Every effort should be made to collect data from the participant or an appropriately informed significant other. Data from other sources (indicated by code “4” ) should be entered only if:

  1. it has not been possible to obtain that information from the person or significant other during the follow-up window,
  2. those data were originally collected during the follow-up window, and
  3. the data meet TBIMS standards for data collection procedures and data quality standards.

Interviewers should use their best judgment in determining whether a significant other has enough current knowledge of the participant to accurately answer follow-up questions.

Interview Length should be based solely on the time spent with the participant on the phone.
Begin timing as soon as the participant answers the phone. End timing when last question has been answered.

If interview is completed over multiple calls, add times for each call together.

Code ‘NA: Funding Not available’ is not shown on data collection form because it is a special purpose code and should not be used in normal data collection/submission.

NOTE: Court ordered rehab is considered a form of incarceration for the purposes of the TBIMS. Do not perform follow-up interview and code as incarcerated.

Characteristics

Cases completed prior to 1/15/2017 with both archived variables ‘Method of Data Collection - Person with TBI’ and ‘Method of Data Collection - Family Member/Significant Other’ completed by either codes 1 - In Person Interview; 2 - Telephone Interview; 3 - Questionnaire Mailing; or 4 - Data Obtained From Secondary Source; will be re-coded as data collected from person with TBI as ‘Primary Method of Data Collection’ and data collected from family/SO as ’Secondary Method of Data Collection.

If data was collected only from either the person with TBI or Family Member/Significant Other prior to 1/15/2017, this was re-coded as ‘Primary Method of Data Collection’.

On 7/1/2024, codes “20 - Other”, and “10 - Medical Records” were added to Primary and Secondary Source. Prior to this date, “Other” was coded as “10” and may have included data obtained through medical records review.

Variables

Form Type

Variable

ID

Question

History

Form 1

DataFrom

431

Who answered these questions?

2017-01-15 - Variable Added

Form 1

DataMethod

432

Data collection method:

2017-01-15 - Variable Added

Form 2

CollectionMethodPrimaryF

610

Primary method of data collection:

2017-01-15 - Variable Added

Form 2

IntStatus

718

Interview status:

1989-10-01 - Variable Added

Form 2

LostPhoneF

4030

Phone Contact:

2017-01-15 - Variable ADDED

Form 2

CollectionSourcePrimaryF

612

Primary source of data collection:

2017-01-15 - Variable Added

Form 2

LostDirAsstF

4030

Directory Assistance:

2017-01-15 - Variable ADDED

Form 2

LostReasonF

724

If lost, why?

2017-01-15 - Variable Added

Form 2

CollectionMethodSecondaryF

611

Secondary method of data collection:

2017-01-15 - Variable Added

Form 2

LostIntSitesF

4030

Internet Sites:

2017-01-15 - Variable ADDED
2017-01-15 - Variable ADDED

Form 2

CollectionSourceSecondaryF

613

Secondary source of data collection:

2017-01-15 - Variable Added

Form 2

LostPostalF

4030

Postal:

2017-01-15 - Variable ADDED

Form 2

LostHospRecF

4030

Hospital Records:

2017-01-15 - Variable ADDED

Form 2

ReasonNoDataIndF

750

Reason person with TBI not providing data:

2017-01-15 - Variable Added

Form 2

LengthInterviewF

720

How long did this interview take:

2017-01-15 - Variable Added

Form 2

LostHospStaffF

4030

Hospital Staff:

2017-01-15 - Variable ADDED

Form 2

CollectionFormatF

608

Format used for data collection:

2017-01-15 - Variable Added

Form 2

LostDeathSrchF

4030

Death Search:

2017-01-15 - Variable Added

Form 2

CollectionLanguageF

609

Language interview was conducted in:

2017-01-15 - Variable Added

Form 2

LostInmateSrchF

4030

Inmate Search:

2017-01-15 - Variable ADDED

Form 2

CollectiontranslationserviceF

614

If Spanish or other language, was a translation service used:

2017-01-15 - Variable Added

Form 2

LostLocSrvF

4030

Location Serivces:

2017-01-15 - Variable ADDED

Form 2

LostNoteF

Note:

2017-01-15 - Variable ADDED

Codes and Values

ID 431

For Form: [Form 1]
For Variables: [DataFrom]

Code

Description

0

Participant

1

Spouse

2

Parent(s)

3

Sibling

4

Adult Child

5

Boyfriend, girlfriend, fiance

7

Other relative

8

Friend

9

Professional Caregiver

88

NA

99

Unknown

ID 432

For Form: [Form 1]
For Variables: [DataMethod]

Code

Description

1

Interview

2

Questionnaire

3

Spanish Questionnaire

4

Professional Translator: Spanish

5

Professional Translator: Other language

6

Other translator: Spanish

7

Other translator: Other language

10

Other

888

NA

999

Unknown

ID 4030

For Form: [Form 2]
For Variables: [LostPhoneF, LostDirAsstF, LostIntSitesF, LostPostalF, LostHospRecF, LostHospStaffF, LostDeathSrchF, LostInmateSrchF, LostLocSrvF]

Code

Description

0

No

1

Yes

ID 608

For Form: [Form 2]
For Variables: [CollectionFormatF]

Code

Description

1

Online Interview

2

Paper Interview

ID 609

For Form: [Form 2]
For Variables: [CollectionLanguageF]

Code

Description

1

English

2

Spanish

3

Other

ID 610

For Form: [Form 2]
For Variables: [CollectionMethodPrimaryF]

Code

Description

1

In Person Interview

2

Telephone Interview

3

Questionnaire Mailing

4

Data Obtained from Second Source

81

NA: Funding Not available

82

Not Applicable

99

Unknown

ID 611

For Form: [Form 2]
For Variables: [CollectionMethodSecondaryF]

Code

Description

1

In Person Interview

2

Telephone Interview

3

Questionnaire Mailing

4

Data Obtained from Second Source

81

NA: Funding Not available

82

NA: No Secondary Method of Data Collection

99

Unknown

ID 612

For Form: [Form 2]
For Variables: [CollectionSourcePrimaryF]

Code

Description

0

Participant

1

Spouse

2

Parent(s)

3

Sibling

4

Adult Child

5

Boyfriend, girlfriend, fiancé

7

Other relative

8

Friend

9

Professional Caregiver

10

Medical Record

20

Other

888

NA

999

Unknown

ID 613

For Form: [Form 2]
For Variables: [CollectionSourceSecondaryF]

Code

Description

0

Participant

1

Spouse

2

Parent(s)

3

Sibling

4

Adult Child

5

Boyfriend, girlfriend, fiancé

7

Other relative

8

Friend

9

Professional Caregiver

10

Medical Record

20

Other

888

NA: No Secondary Data Source

999

Unknown

ID 614

For Form: [Form 2]
For Variables: [CollectiontranslationserviceF]

Code

Description

0

No

1

Yes

88

NA - Interview conducted in English

ID 718

For Form: [Form 2]
For Variables: [IntStatus]

Code

Description

1

Followed

2

Lost

3

Refused

4

Incarcerated

5

Withdrew

6

Expired

7

No Funding

87

Future FollowUpPeriod

ID 720

For Form: [Form 2]
For Variables: [LengthInterviewF]

Code

Description

8881

NA- Data Collected Online

8882

NA- Data Collected by Mail-Out

9999

Unknown

ID 724

For Form: [Form 2]
For Variables: [LostReasonF]

Code

Description

1

No Known Valid Contact Information

2

Valid Contact Information, No Response To Contact (Passive Refusal)

3

Valid Contact Information, Participant Not Physically or Cognitively Available, No Valid SO

4

Language Barrier

5

Out of Country

81

Not Applicable

82

Not Applicable, Expired

83

Not Applicable (Funding Not Available)

88

Not Applicable (Data Was Provided)

99

Unknown

ID 750

For Form: [Form 2]
For Variables: [ReasonNoDataIndF]

Code

Description

3

Physically Or Cognitively Unable

4

Not Available

5

Stated Refusal

6

No Response To Contact

8

Language Barrier

9

Expired

81

Not Applicable (Funding Not Available)

82

Not Applicable (Data Was Provided)

99

Unknown

ID NA: No codes found.

History

Date

Description

2006-02-13

Added NOTE : regarding the use of code '4 - Data Obtained from Secondary Source'.

2012-06-07

Added CODE: '7' No Funding.

2017-01-15

Added VARIABLE: LostReason

2017-01-15

Added VARIABLES: CollectionFormat, CollectionLanguage, CollectionMethodPrimary, CollectionMethodSecondary, CollectionSourcePrimary, CollectionSourceSecondary, CollectionTranslationService, LengthInterview.

2022-07-01

Added NOTES : Interview Length should be based solely on the time spent with the participant on the phone.
Begin timing as soon as the participant answers the phone. End timing when last question has been answered.
If interview is completed over multiple calls, add times for each call together.

2024-07-01

Added Characteristics: On 7/1/2024, codes "20 - Other", and “10 - Medical Records” were added to Primary and Secondary Source. Prior to this date, “Other” was coded as “10” and may have included data obtained through medical records review.